Audiology Counseling and Patient-Centered Care: Part I

Kris English, PhD

The University of Akron/NOAC

ke3@uakron.edu

 

In 2001, the Institute of Medicine recommended six goals to improve health care, by taking steps to ensure that health care is:

  • Safe: avoiding injuries to patients from the care that is intended to help them.
  • Effective: providing services based on scientific knowledge to all who could benefit, and refraining from providing services to those not likely to benefit.
  • Patient-centered: providing care that is respectful of and responsive to in­dividual patient preferences, needs, and values, and ensuring that patient values guide all clinical decisions.
  • Timely: reducing waits and sometimes harmful delays for both those who receive and those who give care.
  • Efficient: avoiding waste, including waste of equipment, supplies, ideas, and energy.
  • Equitable: providing care that does not vary in quality because of personal characteristics such as gender, ethnicity, geographic location, and socioeconomic status.

Patient-centeredness is especially relevant to this web forum, since it assumes a set of therapeutic skills in interpersonal communication.  But although the IOM provides this working definition, the following concerns can be found in health care literature:

“Patient-centered care (PCC) is a poorly conceptualized phenomenon and can indicate anything from soothing room design, emotional support of patients, customization of meals, to support of patient decision making. This inconsistency across the clinical and research literature makes the application of PCC difficult” (Hobbs, 2009, p. 52).

“The term person-centered care (PCC) has been frequently used in the literature, but there is no consensus about its meaning” (Morgan & Yoder, 2012, p. 6).

“A clear definition is lacking” (Rathert et al., 2012, p. 351).

“The implementation of PCC has been hampered by the lack of a clear definition and method of measurement (Robinson et al., 2009, p. 600).

“We still don’t know how to do [PCC] or how to teach it” (Cassel, 2013, p. xii).

A bit alarming! However, since 1995, patient-centeredness has been expertly addressed by Stewart et al. (mostly recently in 2014), and in my humble opinion, their text serves as a gold standard: not only do they clearly and comprehensively define patient-centeredness, but they also show the reader “how to do it” and “how to teach it.”

To date, patient-centered care (PCC) has been only indirectly addressed in audiology, likely resulting in the same problems with clarity mentioned above. However, clarity is needed now more than ever, as audiology strives to elevate its relevance in health care “beyond the audiogram” and “beyond technology” by returning, as many say, “back to our roots” as fully-rounded and value-added care providers. For our patients’ sakes and for our future as a helping profession, we must commit to and effectively practice evidence-based patient-centeredness.

This entry is the first in a 5-part series designed to compile what we know about PCC in audiology, as well as identify what we don’t know. The next four entries willl explore the concept of patient-centeredness in audiology practices, using Stewart et al.’s (2014) “interactive components” as a framework:

 

Exploring Heath, Disease and the Illness Experience (May 2017)

  • Unique perceptions and experience of health (meaning and aspirations)
  • History, physical, lab
  • Dimensions of the illness experience (feelings, ideas, effects on function and expectations

Understanding the Whole Person (June 2017)

  • The person (e.g., life history personal and developmental issues)
  • The proximal context (e.g., family, employment, social support)
  • The distal context (e.g., cultural, community, ecosystem)

Finding Common Ground (July 2017)

  • Problems and priorities
  • Goals of treatment and/or management
  • Roles of patient and doctor (audiologist)

Enhancing the Patient-Clinician Relationship (August 2017)

  • Compassion and empathy
  • Power
  • Healing and hope
  • Self-awareness and practical wisdom
  • Transference and countertransference

Each module will include an informal self-assessment, plus encouragement to connect with a like-minded colleague to discuss, test out, and grow into new patient-centered practices.  A seemingly small change such as not describing the audiogram to every new patient merely out of habit tends to make us very uncomfortable. Support from colleagues can help us step out of our comfort zone.

Invitation: If the reader is interested in contributing to this topic, please send a note to the email address at the top of this page.

References:

Cassell, E.J. (2013). The nature of healing: The modern practice of medicine. New York: Oxford University Press.

Hobbs, J.L. (2009). A dimensional analysis of patient-centered care. Nursing Research, 58(1), 52-62.

Institute of Medicine. (2001). Crossing the chasm: A new health system for the 21st century. Washington DC: National Academy Press.

Morgan, S., & Yoder, L.H. (2012). A concept analysis of patient-centered care. Journal of Holistic Nursing, 30(1), 6-15.

Rathert, C., Wyrwich, M.D., & Boren, S.A. (2012) Patient-centered care and outcomes: A systematic review of the literature. Medical Care Research and Review, 70(4), 351-379.

Robinson, J.h., Callister, L.S., Berry., J.A., & Dearing, K.S. (2008). Patient-centered care and adherence: Definitions and applications to improve outcomes. American Academy of Nurse Practitioners, 20, 600-607.

Stewart, M., Brown, J.B., Weston, W.W., McWhinney, I.R., McWilliams, C.L., & Freeman, T.R. (2014). Patient centered medicine: Transforming the clinical method (3rd ed.). London: Radcliff Publishing.

From Person-Centered Moments to Person-Centered Culture

Laya Poost-Foroosh, PhD., MClSc.
AMS Phoenix Fellow & Research Associate
St. Michael’s Hospital, Toronto, Canada
Audiologist
Sound Advice Hearing Clinic, Toronto, Canada

Many organizations and healthcare professionals have person-centered aspirations and perceive their model of care to be person-centered. However, the complexities and constraints of actual practice may lead to person-centered moments, occurring in spite of health systems that actually impede person-centered care. As more organizations declare person-centered care as their preferred model of practice, challenges to effectively deploy person-centered care start to emerge. These challenges include both organizational challenges that are embedded in the organizational practice culture and individual challenges associated with lack of adequate training. These challenges could impact how person-centered care is perceived and enacted in different organizations. The following are two examples of encounters that have elements or degrees of person-centered care; however, they result in different outcomes and different care experience by patient.

A Person-Centered Moment

Emily is an 8-year old girl whose teacher suggested her hearing to be tested. Her parents took Emily to see an audiologist. The hearing assessment showed a permanent moderate hearing loss in both ears. When Emily’s parents heard the test results and learned that she needed hearing aids, they were shocked. They were also shocked to hear how much the instruments cost and how much commitment and follow-up it would take to manage Emily’s hearing needs. They felt the audiologist was kind and thorough with testing; she spent one full hour with them and explained the test results and hearing aid options and why it was important for Emily to use hearing aids. She also provided different hearing aid options. However, all of the options were beyond their budget, so they told the audiologist they needed to think about it. They left the clinic without any immediate treatment plans.

seeking “an emotional engagement with the patient that goes beyond sharing information” (Stewart et al., 2014, p. 10)

A Person-Centered Culture

This scenario has played out differently in another setting. In the second setting, Emily’s audiologist recommended hearing aids and Emily’s parents showed some hesitation to follow up with the recommendation. However, in this scenario the audiologist did not want them to leave without knowing what the source of their hesitation was. The audiologist did not know what the issue was; were the parents shocked with the news and needing more time to process it? Was the issue the stigma associated with wearing hearing aids? Or were there concerns with the cost of the intervention? So, she spent more time to get to know Emily and her family. She learned that there were some concerns with Emily’s hearing when she was younger but her parents did not take it seriously because Emily started talking, reading, and writing in line with typical developmental expectations.

They also thought the reason that Emily did not socialize in school like other kids her age was because she was shy. They did not attribute Emily’s poor academic performance to her hearing because they were never academically strong themselves. Emily’s dad works in a bakery and her mom has a part time job with minimum wage. Emily has three siblings ranging in age from 3 to 11.

After taking the time to get to know the family better, the audiologist realized the reason for Emily’s parents’ hesitation was a complex mix of guilt, regret, and frustration. While their most tangible concern was the cost associated with getting hearing aids, they also felt regret for not having noticed or acted sooner, and could not help but wonder if Emily had missed out on academic and social development over the years as a result of their own failings.

Continue reading

When Patients Look Away, Do We Keep Talking?

 

Kris English, PhD

The University of Akron/NOAC

We get so busy. We have much to accomplish in an appointment, slightly on auto-pilot but the conversation seems to be going well, and then …

 

…the patient (or parent) breaks eye contact. She looks at the floor, or her hands, or the door (no mystery what that likely means), or at nothing in particular. Do we notice? If we notice, do we pause? Or do we keep talking and ignore the nonverbal cue?

Patient and parent interactions seem so routine, it is easy to overlook the underlying dynamics, although medicine has studied them for years (Finset, 2016).  A starting point for audiology is the consideration of eye contact – a simple concept but not much discussed in our literature.  So let’s consider it now:

Question #1  How many times during an appointment does a patient or parent break eye contact? As a profession, we don’t know. As professionals, we probably have never noticed.

Question #2  Why do patients break eye contact? What does it mean when a patient looks away from our face, or withdraws from our joint attention on devices or forms? We can’t be sure, but the patient is probably thinking about/feeling something new. Perhaps he is trying to process what we are saying. Perhaps a wave of emotion has interrupted his ability to concentrate. Perhaps our conversation triggered a memory, a doubt, a worry, a question, a regret, a recognition of embarrassing-but-real vanity (Kajimura & Nomura, 2016).

Question #3  What do we do when a patient or parent looks away?  As members of Western culture, our instinct is likely to keep talking, because we are socialized to move the conversation forward and avoid awkward silences. And yet as we do so, we must realize that (1) we are wasting effort because the patient is not listening, and (2) we are missing a potential opportunity to help. At this moment, something weighs on this person’s mind and heart, and if allowed an extra moment, he may wish to share it. However, by forging ahead, we unwittingly violate a basic principle of patient-centered care. Continue reading

Like the Emperor’s New Clothes … Invisible! Or at Least Tiny or Discreet?

Hearing Excellence Low Resolution-9533Jeanine Doherty, Au.D., M.Phil., M.B.S, B.Soc.Sci.(Hons.)

Hearing Excellence, Christchurch, New Zealand

In Hans Christian Andersen’s (1837) tale, an Emperor’s weavers said they made him some new clothes that would be visible to all but the stupid or incompetent, when in fact they had made no clothes at all. So he walked around naked, yet believed he was attractively well dressed and adequately demonstrating his position of achievement and power.

We must hope that hearing aid manufacturers are not looking at hearing aid visibility with the same deceptive reasoning, for in their push for invisibility as desirable, audiologists and aid wearers could be treated as if a bit stupid. Completely in-the-ear hearing aids were introduced by the manufacturers, in part, as a solution for stigma or the “hearing aid effect” (Johnson et al, 2005) and yet it can be argued that making the devices discreet actually contributes to self-stigma, a belief that hearing loss is a problem that should be hidden (Kelly & Wensveen 2014; Wallhagen, 2009).

Invisible hearing aids have also been shown to produce the highest mark-up factor for both manufacturer and audiologist (De Silva, Thakur & Xie, 2013). It could be suggested that our promotion of invisible aids is a social construction suiting our own benefit.  Or is invisibility also, or solely, an end-user concern? What is a patient’s desire for invisibility driven by? Vanity, stigma, gender, significant-other input? How do we counsel that size really does not matter?

Vanity and Stigma

Most human interactions involve an appreciable chance of being slightly embarrassed, or a slight chance of being deeply humiliated (Goffman, 1959). We spend a lot of energy managing the impressions we make in appearance and lifestyle to avoid embarrassment to the best we can (Scheff, 2013), Cooley (1922) wrote that our perception of ourselves has 3 principal elements:

  1. Our imagination of our appearance to others
  2. Our imagination of their judgement of our appearance
  3. Self-judgement about these imaginings, such as pride or mortification

The four traits of vanity common within sociology, psychology and philosophy literature are consistent with Cooley: (1) appearance concern, (2) concern about appearance perception, (3) achievement concern and (4) concern about achievement perception. Appearance concern and achievement concern are related to personal values, while the two perception components relate to self-concept (Wang & Waller, 2006).

Wang and Waller (ibid.) state that advertising messages use this knowledge to appeal to our need for physical beauty and achievement status. We see the symbolically positive appeal, for example in an expensive handbag or car advert, where customers are told their beauty and/or status will improve with ownership. In hearing aid adverts, we see a negative spin on product visibility; consumers, then, are led to prefer invisibility to protect their self-image. Continue reading

Education in Counseling and Audiologic Rehabilitation: An Inseparable Linking

ClarkJohnJohn Greer Clark, PhD

The University of Cincinnati

Several years ago, our university went through, what seemed at the time, a major upheaval as we transitioned from a quarter-based institution to the more conventional semester system. In the process several courses in our department that had previously been separate were combined. In subsequent years my teaching of counseling and audiologic rehabilitation have become intertwined which has led to a more hands on, practical learning of both topics.

Preparation of future clinicians within our profession is likely not that different than in other professions in many ways. I am sure that we are not unique in the dilemma that classroom teaching does not always reflect what students practice in their clinical settings. In the 1960s and 1970s we ardently argued that the full management of hearing loss, including the dispensing of products to assist those with hearing deficits, could indeed be done ethically. And we argued that we were the best prepared to provide this service and that we could do it better. I do believe we are better prepared and can fully service those with hearing loss more effectively than other hearing health care professions. However, it is dismaying that we largely adopted the dispensing practices already in place and have not substantially deviated from these over the years to incorporate better use of personal adjustment counseling and to address more fully the rehabilitative needs of patients.

In the classroom, I teach hearing aid fitting and the continued post-fitting needs of the patient with a strong counseling emphasis. My students frequently tell me what I already know: that this is not what is seen in their practicum sites. They seem to have forgotten that I forewarned them of this.

Every Patient’s Story Matters

Clinically, we still fail to engage our patients in the telling of their stories. We believe we can most often predict the impact of hearing loss from the audiogram (Pietrzyk, 2009). But even if we could predict the impact, these are our patients’ stories and our patients have the right to tell their stories to an empathic listener who can guide them through considerations of the impact of the hearing loss through self-assessment measures. While more introspective than other animal species, humans frequently lack the ability to be fully introspective of limitations they do not want to admit or fear to confront. It is normal human nature to avoid what can be perceived as uncomfortable discussions relative to displayed emotions and frustrations. Students need experience in the classroom and in the clinic with broaching these discussions and working toward effective solutions with patients. The teaching of effective hearing loss impact exploration, and using this within motivational engagement work with patients, is now a large part of my combined counseling and audiologic rehabilitation class. Continue reading

Taking Audiology Practice in Ghana to the Next Level

UnknownGeorgina Aidoo

Occupational Audiologist

Ghana, West Africa

I have always strived to search for the unique dynamics and realities in Audiology and ultimately discover what makes our patients incomplete without our services and our personal care. I have to face many encumbrances right from the onset of this journey, as being in Africa, and even in West Africa, my developing and third world country has made the trends very challenging, with diverse milestones which all bring learning experiences that are priceless. Pursuing a Doctor of Audiology degree will give me a wide range of opportunities and experiences to develop knowledge, skills and attitudes which will enable me to grow the field and advocate for change.

Challenges

Audiology practice and management of hearing loss and balancing disorders usually does not command much attention in third world countries, even though various studies and estimates indicate that two-thirds of the world’s populations of hearing impaired people live in the developing countries. In many African countries, the general awareness of Audiology and hearing loss management is low, and lack of resources, ignorance, illiteracy, cultural diversity and national priorities among many other factors relating to technology enhancement and sense of focus has caused a lack of strong advocacy in this area. The Africa continent has a predominantly young population and many are at risk of getting diseases causing hearing loss (McPherson & Holboro, 1985). Overall, it is estimated that in the countries below Sahara, more than 1.2 million children aged between 5 and 14 years suffer from moderate to severe hearing loss in both ears. General prevalence studies show higher rates of severe to profound hearing loss in this part of Africa than in other developing countries.

Hearing problems are a severe handicap, particularly in developing countries where the ability to take part in normal conversations is vital for economic and social survival. However, many are illiterate as well as hearing impaired, and thus unable to communicate by writing and reading. It is difficult to get an exact overview of the prevalence and causes of hearing loss in Africa. Several studies have been conducted but they use different methods and not all are up to date. However, they do serve as indicators and together they provide a general picture of the situation.

Unknown-1The case of Ghana is no different. In spite of the fact that hearing and balancing disorders are common among persons in communities in Ghana, very few studies have been carried out. The pace of development is very slow despite how critical the need is.

It took an extraordinary effort for me to enroll in an Au.D program after saving for almost a decade all in relation with finding the true purpose my commitment to the field, and I continue to explore and advocate in quest of gaining deep knowledge to help spread Audiology, especially in Ghana and West Africa where silence has swallowed sufferers’ desire to seek help. Continue reading

Teaching Counseling in Audiology: Are We There Yet?

Karen Munoz2Karen Muñoz, EdD

Utah State University

The importance of counseling is well recognized for the vital role it plays in audiology service delivery. There are text books devoted to counseling (e.g., Clark & English, 2014), and continuing education opportunities for interested professionals. Counseling is included in audiology scopes of practice (ASHA, 2004; AAA, 2004), and audiology preferred practice guidelines (ASHA, 2006). It sounds like as a profession we have this covered. But do we?

Even though there is agreement on the foundational role counseling plays in audiology service delivery, the lack of depth in professional practice guidelines leaves expectations for graduate training vague. Counseling competencies, just like other skills audiologists learn, need intentional instruction for knowledge and skill acquisition. Similar to student learning for other evidence-based audiology services, bridging of knowledge is needed between coursework and clinical experiences. For this to occur, clinical supervisors need to be intentionally practicing and teaching evidence-based counseling skills. Without careful attention to counseling training, it is unlikely that graduate students will be purposeful in their approach to counseling. You may be thinking, of course counseling is happening, why would this be a problem that needs attention?

Counseling Skills: Not a GivenDay2.5

Patients have shared their experiences with audiologists and it is clear that counseling ability does not just happen to develop along the way. Parents have reported gaps in the information and support they received (e.g., Larsen et al., 2012; Muñoz et al. 2013). Hearing aid uptake among adults with hearing loss is low (Kochkin, 2009), but influential factors are not well defined. There is a need for further research to better understand the influence of factors such as audiologists’ counseling skills, patient self-efficacy, and overall type and quality of interactions between the audiologist and patient (Knudsen et al., 2010). Recent research has also raised concerns with how counseling conversations are happening in audiology. Analysis of audio-recorded appointments with adult clients considering hearing aids revealed that audiologists responded to client psychosocial concerns with technical information, ignoring the emotional content of concerns raised (Ekberg et al., 2014). During history-taking, in a related study, audiologists often interrupted the client early on, and then maintained verbal dominance during the appointment (Grenness et al., 2014).

Patient Centered Care

Patient-centered care is widely recognized as an important feature of healthcare delivery that can lead to improved outcomes and adherence with recommendations (Robinson et al., 2008; Zolnierek & DiMatteo, 2009). Patients seeking audiology services, not surprisingly, also want services that are patient-centered (Laplante-Lévesque et al., 2014). It may seem that being patient-centered should occur if the practitioner values it and is aware, but awareness alone is not sufficient for changing behavior (Muñoz et al., 2015). Counseling is more than being a caring and compassionate professional, and while the skills needed to provide effective counseling are not necessarily difficult to learn, they are not intuitively implemented. Just think about a time when you did not feel heard, or were not given an opportunity to voice your thoughts, or were told how to fix your health concern.

Focus and Feedback

Effective use of counseling skills requires knowledge about behavior and factors that influence behavior (yours and your patients), opportunity to practice implementing skills, and performance feedback. In other words, it needs to be intentionally taught,conversation-bubbles-illustration-970x450_28517-2 just like other skills in audiology such as completing a diagnostic test or troubleshooting hearing aids. Teaching counseling in our graduate training programs needs to be approached from an evidence-based perspective. Audiology would benefit from clear evidence-based counseling guidelines that provide a consistent message about the purpose, indicate needed knowledge and skills, and training considerations for classroom and clinical experiences. Teaching counseling in audiology is in need of attention and further research to improve educational practices, implementation of skills, and most importantly, to positively influence client and family outcomes.

References

American Academy of Audiology. (2004). Scope of practice.

American Speech-Language-Hearing Association. (2004). Scope of practice in audiology. 

American Speech-Language-Hearing Association. (2006). Preferred practice patterns for the profession of audiology.

Ekberg K, Grenness C, & Hickson L. (2014) Addressing patients’ psychosocial concerns regarding hearing aids within audiology appointments for older adults. American Journal of Audiolology, 23, 337-350. doi:10.1044/2014_AJA-14-0011

Clark, J.G., & English, K.M. (2014). Counseling-infused audiologic care.Boston: Pearson.

Grenness, C., Hickson, L., Laplante-Lévesque, A., Meyer, C., & Davidson, B. (2014). Communication patterns in audiologic rehabilitation history-taking: Audiologists, patients, and their companions. Ear & Hearing, 36, 191-204.

Knudsen, L.V., Oberg, M., Nielsen, C., Naylor, G., & Kramer, S.E. (2010). Factors influencing help seeking, hearing aid uptake, hearing aid use and satisfaction with hearing aids: A review of the literature. Trends in Hearing, 14(3), 127-154.

Kochkin, S. (2009). MarkTrak VIII: 25-year trends in the hearing health market.

Laplante-Lévesque, A., Hickson, L., & Grenness, C. (2014). An Australian survey of audiologists’ preferences for patient-centeredness. International Journal of Audiology, 53:sup1, S76-S82.

Larsen, B., Muñoz, K., DesGeorges, J., Nelson, L., & Kennedy, S. (2012). Early Hearing Detection and Intervention: Parent experiences with the diagnostic hearing assessment. American Journal of Audiology, 21, 91-99.

Muñoz, K., Blaiser, K., & Barwick, K. (2013). Parent hearing aid experiences in the United States. Journal of the American Academy of Audiology, 24(1), 5-16.

Muñoz, K., Nelson, L., Blaiser, K, Price, T., & Twohig, M. (2015). Improving support for parents of children with hearing loss: Provider training on use of targeted communication strategies. Journal of the American Academy of Audiology, 26(2), 116-127.

Robinson, J.H., Callister, L.C., Berry, J.A., & Dearing, K.A. (2008). Patient-centered care and adherence: definitions and applications to improve outcomes. Journal of American Academy of Nurse Practitioners, 20, 600-607.

Zolnierek, K.B.H., & DiMatteo, M.R. (2009). Physician communication and patient adherence to treatment: A meta-analysis. Med Care, 47(8), 826-834. Doi: 10.1097/MLR.0b013e31819a5acc

 

“Not a Day Goes By That I Don’t Think About Listening with My ‘3rd Ear’”

(Recent comment by an AuD graduate who has been practicing for several years)

Judith Blumsack, PhD

Associate Professor Emerita

Auburn University

Those of us who teach counseling to Au.D. students can look to a variety of sources as we develop coursework. Descriptions of approaches used by professional counseling educators, colleagues in other health professions who are teaching counseling, and our own colleagues are available to us, and efficacy studies in audiology are beginning to appear (e.g. English & Archbold, 2014). During the time I taught counseling, I used a variety of learning activities. I have no efficacy research to report, but perhaps my experiences with these learning activities and my thoughts about them might be of interest to readers of this forum.

Inviting Visitors to the Class: Patients

Patients Can Be Guest Speakers

Patients and Parents as Guest Speakers

One of the learning activities I used involved inviting patients to visit the class. Each semester, through networking, I located patients who would be willing to join the counseling class for our afternoon group meeting. I should mention that our class met once each week and was three hours long to avoid constraints imposed by the standard 55 minute class session. In scheduling patient visits each semester, I arranged for one of the visitors to be an adult with hearing loss and one visitor to be a parent of a child with hearing impairment. We began each session by briefly introducing ourselves individually and asking the visitors to then do the same. The visitors, though, would keep talking. They would tell us things they thought would be helpful for students to hear. These visits were all memorable, and sometimes they were very moving. The visitors understood that the purpose of their visit to our class was to create a situation where they would be the teacher while the student, with no white coat on, could truly be a student and not a student clinician. Students were encouraged to ask questions. The visitors knew that they could decline to answer a question if they wished, but it is notable that, without exception, the visitors seemed to welcome the opportunity to share their experiences. Here was a situation where listening and understanding was the very purpose of the encounter, not testing, not interpreting results, not making recommendations…….just listening. It was my hope that the students would learn not only about the specifics of that visitor’s experience, but that they would see that patients have much to teach them.

Inviting Visitors to the Class: Professional Counselors

Continue reading

Counseling Assumptions/Explaining The Audiogram

Kris English, Ph.D.Kris English, PhD

The University of Akron/NOAC

 

Back in the day (mid-1980’s), like all Master’s degree students in the US at the time, I took a typical course in Adult Aural Rehab. For some reason I remember this little pop quiz:

 

I was ready for the question and jotted down the answers:

  1. take a case history
  2. conduct tests
  3. report test results
  4. make recommendations.

I got an A on the quiz, confident I had the world by the tail, eventually graduated and worked in the field… and immediately realized that my answers, although not wrong, were not enough. I was assuming that all patients were ready to accept my recommendations and would follow up accordingly. And of course, that was not happening. There were days when only a few patients moved forward with hearing help. Patients were far more complicated than I had expected, and I wasn’t factoring in any of those complications. I didn’t even know what those complications were.

There was no terminology for my approach at the time, but now I know it can be called audiologist-centered (i.e., it was all about me). Consistent with my quiz answers, I expected to direct the appointment, while the patient passively followed my lead. I didn’t intend to be disrespectful or dismissive of the patient’s role, but I held a naïve (some would say paternalistic) assumption that patients had no say because they didn’t know what I knew, and I knew best. In reality, of course adult patients are anything but passive: they are autonomous beings and they will make decisions with or without our involvement (Tauber, 2005).

In contrast to my first efforts, patient-centeredness is a concept that has now made it to “center stage” (Epstein & Street, 2010) and is considered one of the Institute of Medicine’s (2001) six key elements of high quality care. The IOM defines patient-centered care as “providing care that is respectful of and responsive to individual patient preferences, needs, and values and ensuring that patient values guide all clinical decisions” (p. 6). This kind of care requires dialogue, not monologue, and even further, the ability to develop relationships and partnerships. Today, my quiz answers would be worth a “C” grade at best.

Other Assumptions?

Another assumption that surely should be reconsidered is related to my third answer above (report test results), specifically regarding our beloved audiogram. As important as it is to us, should we assume that all patients are also equally fascinated? More than twenty years ago, Martin (1994) challenged this assumption, and yet in a recent workshop, a participant mentioned that in her 20 years of practice, it had not once occurred to her to ask this question. So let’s think about it:

  1. Do all patients really want a crash course in audiology?
  2. If not, what do they want from us?
  3. If they do prefer specific information, how do we know if we are sharing information effectively?

As we apply patient-centered principles to our audiologic practices, it seems long overdue to examine the practice of unquestionly explaining the audiogram to every patient or caregiver. Apart from habit and training, why do we do this? Is it really necessary? Is it actually meaningful? Should we give patients a choice, or do we truly believe they cannot leave the appointment without a tutorial in audiogram interpretation? Is the exercise a worthwhile use of time?

questionsWhen we examine this “auto-pilot” practice, even more questions emerge. What would happen if we do give patients a choice, and ask if they would prefer a “big picture” summary or the details?   If they choose “big picture summary,” will we freeze up? Do we use the audiogram as a prop, or can we put our test results to one side, use simple terms to clearly relate the findings to their initial concerns, and move on?

Patient-Centeredness = Patient Choice

Undoubtedly, some patients will appreciate the time spent reviewing test results, and will understand them. But we cannot assume this is always the case, and to date we also cannot consider it an evidence-based practice.  As a deeply-held tradition, reconsidering its value causes a surprising amount of angst.  But the point of patient-centeredness is, it’s not about us!

References

Epstein, RM & Street, RL. (2010). The values and value of patient-centered care. Annuals of Family Medicine, 9(2), 100-103.

Institute of Medicine. (2001). Crossing the quality chasm : A new health system for the 21st century. Washington, DC: National Academy Press.

Martin, F.N. (1994). Conveying diagnostic information. In J. G. Clark & F. N. Martin (Eds.), Effective counseling in audiology (pp. 38-67) Needham Heights, MA: Allyn & Bacon.

Tauber AI. (2005). Patient autonomy and the ethics of responsibility. Cambridge, MA: The MIT Press.

New Thoughts on Hearing Loss and Stigma

Hearing Excellence Low Resolution-9533Jeanine Doherty, Au.D., M.Phil., M.B.S, B.Soc.Sci.(Hons.) of Hearing Excellence

Christchurch, New Zealand

Two models of disability, the medical model and the social model, currently represent the opposing ends of the continuum of what defines disability (Berger & Lorenz, 2015).

The medical model sees disability as an individual’s bodily event and so concentrates on aetiology, diagnosis, prevention, and the treatment of the physical, sensory and/or cognitive impairments. Past scholars of disability often took this negative deviance medical approach; bioethicists and eugenicists have spent most of their energy on justifying the morality of preventing or even eliminating people with disabilities by the use of prenatal testing and abortion, or by withdrawal of care (Parens, 2001).

The social model of disability, at the other end of the spectrum, moves away from the impairment itself to consider the socially imposed barriers for the disabled, such as inaccessibility and unequal rights. It also considers the prejudicial attitude (i.e., stigma) that is constructed around any disability and results in sub-ordinate social status and a devalued life (Berger & Lorenz, 2015; Bickenbach et al., 2014). The social model evolved from the disability rights movements in the UK and USA in the 1960’s and 70’s, and carries the notion that a society should embrace all members and address socially imposed barriers.

Regardless of which model is used, stigma seems to be a universally understood experience. Stigma occurs as a process by which people stereotype, label, judge, and then discriminate against others who are different (While & Clark, 2010) and so they spoil any sense of normal identity for the other person.

Goffman (1963) outlined three causes of social stigma:

  • overt, external deformations;
  • personal trait deviations such as mental disorder or addiction;
  • tribal/cultural deviations from a norm in terms of physical appearance like skin colour, dress style, religion, or behaviour.

Goffman added that stigma is the phenomenon whereby an individual with an attribute is deeply discredited by their society and therefore rejected as a result of the attribute.

Understanding Our Reactions

We are drawn to the unanticipated and the inexplicable in an effort to make sense of the experience, a universal part of our cognitive architecture that natural selection has bequeathed us (Garland-Thomson, 2006). We also experience aversion to others who do not fit into Goffman’s (1971) concept of normalcy. This aversion is a primitive response, demonstrated at the minimum with glancing or staring as a sifting mechanism to define safe or “otherness” status among those around us. For example:

I used to travel with a fellow Board member who had one of the first cochlear implants in New Zealand, which is very obvious as he has no hair to hide it. Walking through airports with him was fascinating as I watched others observe, try to decide what it was, understand/comment to their fellows about it and then finally return to their own activities. Before it could be socialised out of them, children had no concern about direct enquiry of David – “What’s that thing on your head, mister?” Being stared at by an adult can mean a lack of understanding, or at worst a social disregard, but children have the “curiosity excuse,” and he loved to take the pieces off his head and explain them to the fascinated child, while the parent often squirmed in embarrassment.

Although on the surface innocuous, staring is actually a strong reaction towards another person and excites the brainstem’s primitive level neural activity (Garland-Thomson, 2006), which is part of our fight or flight system. Stigmatic judgements are made with such fast glances and decisions. The inclination to stigmatize others has long been documented; for instance, in Roman times thieves and slaves were visibly tattoed to identify them as non-equal human beings.

Stigmatising another person can not only make the stigmatised person suffer negative consequences but can, conversely and perversely, enhance positive feelings of membership of the stigmatising tribe by the rise in self-esteem and sense of power that “doing others down” can bring (Falk, 2001). This tribal group-think against the stigmatised person has been used to justify terrible attacks seen worldwide, in which a stigmatised person – often intellectually disabled —  holds little value and so can be beaten or killed as they are considered sub-human.

31970396_sThe Impact of Labels

 When a label or stigma is applied to a person/group, there is a surrounding negativity or taint which engenders feelings of lesser worth in those subjected to the labelling. Being the subject of stigma can adversely affect the behaviour of the stigmatised by changing their emotions and beliefs (Major, 2005). The stigmatised person can become isolated, and then depression and lack of self-esteem can follow (George, 2015). Internalised stigma also leads to decreased hope and self-efficacy, and a poorer general quality of life (Nabors et al., 2014). This impact is not unique to hearing loss – just think about our seniors who have age labels, hearing loss, vision loss, cognition loss and physical disability labels to carry. Continue reading