Nicolle Yopa, Class of 2015
Kent State University/NOAC
Last year I was presented with an ethical dilemma in clinic. The patient was a high functioning 21-year-old male with Down Syndrome (“John”), who had a bilateral mild-to-moderate mixed hearing loss. John was enrolled in college classes and was being evaluated as his hearing impairment was affecting his ability to follow along in large lecture halls. He was also about to move to campus and live independently, so it was more important than ever that his hearing impairment be treated.
John received much support and encouragement from his father to proceed with amplification. The father attended every appointment with John, including the hearing aid evaluation. We recommended RITE aids with custom molds, as John would likely have difficulty inserting a dome in his ears due to dexterity issues. The father agreed and chose to proceed with the fitting. The next day, the father called the clinic; when he discussed our recommendations with his wife, she requested we change the custom molds to an open dome for cosmetic reasons. My supervisor explained to him that we could fulfill that request, but John would have to display successful insertion of the hearing aids before we could let him leave with them. Privately, my supervisor worried that fitting John with domes would set him up for failure.
Worries Confirmed
Both John’s mother and father accompanied him at the hearing aid fitting. This is when we learned that the family was not in complete agreement with our recommended plan to treatment. Unlike the previous appointment, John now wanted nothing to do with the hearing aids and even cried after experiencing difficulty with inserting the dome tips. Despite his difficulties, his mother opposed switching to custom molds. Her main concern was that the hearing aids could be seen from behind. This concern in turn became John’s concern and he showed much discomfort in wearing them. His mother stood her ground when we wanted John to keep practicing. She told us that they were “educated people who could help John at home.” For reasons unknown, family and audiologists were not sharing the same goal: to confirm that John could manage this task on his own.
The appointment was scheduled for an hour but John’s mother cut us off at 30 minutes
because John had class. We told her we had planned on an hour because many important things needed to be discussed; regardless, they opted to cut the appointment short so that John could make the last 20 minutes of class. My supervisor reluctantly agreed to let John leave with the hearing aids and have his parents practice with him at home.
As an educational clinic, we routinely video record the appointments so that we can critique ourselves later (with written patient permission, of course). When we later viewed this appointment, we learned that John had cried when we stepped out of the room and tossed the hearing aids on the table calling them “a total waste of time.” On his way out, he was heard to comment to his mother that he was taking them off before class.
Predictably, Things Got Worse Continue reading
Alison Marinelli, Class of 2018 (AuD/PhD)
Kris English, PhD
John Greer Clark, PhD
But not all patients who come through our doors have reconciled themselves with their hearing loss. Some still harbor varying degrees of denial, continuing to place much of the blame for communication failures on the speaking habits of others. And these others continue to be viewed as residing in the enemy camp, pushing for actions that are not wanted or that are not perceived as needed.
Kerri Hudson, AuD
Emily Pajevic, Class of 2015
How does an audiologist best serve Amanda and other adolescent patients? We cannot continue to primarily address the parents, undermining the patient’s knowledge and concern for his/her own healthcare and yet cannot ignore the parent’s need for understanding and the crucial role that they play. In healthcare, as well as our own profession, this topic of interacting with adolescents needs to be explored. If the unknown prevents us from providing the best care to this patient population, it is time to delve into this uncharted area, further expanding our knowledge and understanding to enhance our field and our impact on those we serve. 
Michael Squires, Class of 2014
What went wrong? It is obvious that this appointment had come to a point where an audiologist was no longer able to help. Unfortunately, this patient was never referred to anyone who could. There are many instances when a patient in an audiological setting should be referred to another professional for further examination. However, there is one such instance that is consistently ignored; depression. It seems intuitive that any major life changes, including learning of one’s hearing loss, has the potential to cause symptoms of depression. Audiologists are many times the first to notice depression and stress caused or exacerbated by a hearing loss. Yet, when these signs are noticed, whether they are caused by news of a hearing loss or some other event, what is the next step for an audiologist? According to the American Academy of Audiology’s Code of Ethics: